dysautonomia vs ME

mindset

Don’t Just Survive, THRIVE!

One day it will happen. One day I’ll be more than just a conglomeration of symptoms which require many medications to survive, even to consume food. One day I’ll be a person again. I’ll be that girl I once was – but with something added to me, a special bestowal from decades of enduring the unendurable.

What does it even mean to “thrive?” I’ve forgotten. Did I ever know?

Yes I did. When I was a child I thrived enough for ten people. (To learn more of those days read my story,  Journeying Through Hell & Back.)

THRIVING IN CHILDHOOD

I was constantly running. exploring, playing, dreaming, imagining & enjoying my immediate family & large nearby extended family of patriotic hard-working happy Italians who thought of themselves as AMERICANS FIRST & FOREMOST. Dozens of us ate Sunday dinners together (at 3:00 of course), we kids got sips of beer or little sips of wine now & then, we all played in my grandparents’ cellar & backyard with the beautiful fountain everyone swam in when they were small enough, and the beautiful grotto my grandfather made to honor the Blessed Mother. Happiness was our default position. A few of the relatives could be miserable & a little rotten but they were not the norm. I think I came out of my mother’s womb thriving. Old black & white home movies show me moving around as though the film was speeded up. Energy enough for the whole neighborhood.

UPDATE: March 2022

GUESS WHO’S THRIVING NOW?

I am! In the midst of all this autonomic madness I opened an Etsy and Amazon store through an E-Commerce course called the Low Hanging System by Rachel Rofe. I began designing mugs, bags, ornaments, jewelry, pictures, and other wares in July 2021. By that Christmas I had nearly 500 products in the store — every single one was created ME! Even as I was continuing to lose weight and began experiencing malnutrition again, this endeavor was bringing me back to life.

But it wasn’t just making mugs that brought me back to life, it was the coaching we were getting as part of the Low Hanging System. Our coach was a highly successful businessman, serial entrepreneur (along with his amazing business partner & wife, Shannon), and author of the book Integrity is Everything, the great John Lavenia. The man saved my life.

I couldn’t bear the way I felt & couldn’t even imagine being where I am today (3/19/2022). Although I’m down to 95 pounds, which is not good, I know I have come to the end of the illness phase of my life.

Like a diamond underground (thank you Ivie Barnabas), under tremendous pressure, I’m on the verge of being mined into the greatness God had planned for me from the beginning. Like any diamond, I still need polishing (and also to gain 20 pounds back), but without John’s intercession, I WOULD NOT BE ON THIS PLANET. Now I’m a real life entrepreneur running several businesses! Me? Little ol’ me? Yep. And you can do it too. But you need help. EVERYONE DOES. 

In our very first LHS Coaching zoom session, without about 20 other LHS students, I stated I was “starting from below ground zero–” John leaned forward toward the zoom camera and interrupted me. He said, “Do not affirm that.” He spoke to me using quotes from the greats I had already read but not been able to properly apply in my life. Greats like Napoleon Hill, Wallace D Wattles, Neville Goddard, Dr. Joseph Murphy. Hearing their words was like coming out of a dream. Even so, the next day I did it again. I said something along the same lines of being un-able to do … whatever–because I felt so physically ill & terrible. I felt like death warmed over. This time John said, “Don’t come to my meetings & say those things. I just told you yesterday not to affirm such thoughts. So cut it out.” His words struck me right in the heart. From that moment I started to turn around. I became the most positive person in the group. People started coming to me for help……

….Then I started going to John’s Monday night Book Study–part of his Success Mastermind. My husband was seeing me transform before his eyes. He’s an intellectual anyway so Book Study is right up his alley. We loved it, became members, and found a new & wonderful group of like-minded individuals who are family now. Go get a free two-week trial for yourself. You’re mad not to! It will change your life – if you let it. BE-DO-HAVE – that’s the proper order in which one creates for himself and his family the life he’s always wanted. Success, self-mastery, and a better life are all waiting for you at JL Success Mastermind. I thank God every day for putting me in the path of this great man with a giant mind and a pretty fabulous New Jersey Italian sense of humor. Let it be your turn now. You can watch us talking books on youtube. But there’s much more to the JL Success Mastermind platform than Book Study. It is a place of learning, refreshment, cerebral stimulation, kindness, freedom, friendship & love. 

I’m so grateful my path led me to the JL Success Mastermind platform.

Photo by Andre Furtado from Pexels Bar

Why Your Heart Needs A Why

You can choose your purpose. Yep, uh-uh, you can. You don’t have to be knocked off your horse by a flash of light and blinded like Saul in order to discover your purpose. You don’t need to come up with an uber impressive new-agey earth-shattering magnificence beyond the beyond. Anything you love doing that doesn’t feel like drudgery can be a place to start. It may not be where you finish, but you gotta get the starting started.

We all have something to accomplish on this planet. Being gravely ill for years does not aid in the pursuit one’s dreams. In general we are here to be fruitful and multiply and to do our duty to God, family & country. However, each one of us also has a unique purpose for which we came into the world. We were created to create. It’s our job, if you will.

Perhaps you were in the midst of fulfilling your purpose when the dysautonomia thing struck. If so, let’s think about why the dysautonomia thing struck. Were you close to your objective? Were you three feet from gold? If the answer is yes then don’t give up. It was probably old programming dragging you back to where you once thought you were supposed to be. When you have recovered your physical equilibrium, continue on your mission with vigor & determination.

WRONG WAY, TURN BACK

Perhaps though – please be willing to to consider this – perhaps the dysautonomia thing struck because you were attempting to realize the wrong goal – for you. Or perhaps you were blown off course by the winds of a devastating trauma that affected you to your core. If that’s so, dysautonomia probably came to stop you in your tracks and force you to change direction.

Whatever it is, you need something to help reignite the smoldering fire within and give you back your true raison d’être. And that something is: HAVING A WHY.

FACE THE TRUTH – WHATEVER IT IS

If you don’t have a WHY – as in WHY you want to be well – you will remain trapped in the dysautonomia paradigm* longer than necessary. How can you do the work you were put here to do, or even discover what your purpose is, if you’re constantly passing out, having cardiac issues, suffering with terrible pain, or [insert symptom here]?

Pssst — this is not a time-factor thing, it’s a spiritual-factor thing. Nobody’s judging you on how long it takes you to be well. Whether it’s one year or 50 years is not the essential part; it’s the getting well that’s the essential part.

YOU ARE LIMITLESS

No matter what shape you’re in, you can still figure out your WHY. Your mind is the most important place in the world, and that’s where the heart holds your why. In the mind is where you truly reside. The five senses try to convince you you are a body that happens to have a soul. The truth is you are a soul using a body to get you through this testing ground called Earth.

HOW TO GET YOUR WHY

What you need to aim for eventually is to getting YOUR WHY written down. Ask yourself these questions & really dig deep:

  1. Why do you want to be well? (If you want to get somewhere you’ll have to go further than “Because I hate being sick.”)
  2. What is the first thing you will do when you’re done with dysautonomia? (Eat a normal meal or take a walk are fine goals to start with. Go further if you want to. DREAM BIG!)
  3. Write a short paragraph describing a day in your completely healthy dream life. (Bring in your 5 senses – see, smell, hear, touch, taste – so your 6th sense can get to work hardening your vision into reality. Thoughts are Things. Everything in this world is created twice: first, in the mind; second, in the physical world.)
  4. Write one small goal you would like to accomplish in 90 days. (You must believe it is already accomplished. It is essential you maintain unwavering faith in that belief. Only then can you become the person who accomplished it already – quicker than you currently believe is possible.)
  5. Write down a harder goal you want to achieve in 6 months time. (Bring in those 5 senses.)
  6. Where you see yourself a year from today? (Let the 5 senses make your envisioning more realistic. REALIZE THE IDEAL. Let no present appearance to the contrary stop you from imagining a miracle!

JUST START. 

Download & print MY WHY so you can write it down – if you’re up to it. If not, just imagine it. There’s something so spiritually powerful though about putting pen to paper. I recommend that method over computer or cell phone. Whether on paper or in the mind, the main thing is to get it done. Keep refining your goals as you go along. Setbacks don’t matter. What matters is you having faith in your ability to heal.

*Negative Paradigm: defeatist thoughts & unhelpful habits that run through your mind controlling you, whether or not you are aware of them. When you attempt to change the paradigm,” that is, change the habitual patterns you have carried out mindlessly for years, perhaps decades, the paradigm will do everything in its power to stop you. You must take command away from these detrimental misconceptions & inappropriate actions and finally become the commander of your own life. The only power they have over you is the power you give them. Work at building a mountain of powerful positive thoughts until they outweigh the handicapping negative thoughts. By doing so you will have broken the frame of old paradigm and changed the course of your life. You can do it!

OVERCOMING dysautonomia IS possible!

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