What is Ehlers-Danlos Syndrome?
Are you double-jointed? Can you bend over forward & place your palms flat on the floor?
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This site is dedicated to my husband Bob. He is the love of my life, my business partner, my best friend in the whole wide world, and the nicest person you could ever hope to meet – if you were ever so fortunate as to meet him!
Bob has lived the dysautonomia nightmare with me for so long I doubt he remembers what it was like before he ever heard the word dys-auto-blahblahblah. After he heard the word, life was hard. He dealt with so much for so long without complaint. His unwavering support, love, & devotion is what kept me going in the bleakest of times. Without him, I would not be in this realm.
My husband is a deeply religious, humble, quiet, unassuming, very brilliant man. He’s the kind of man who knows the answer before anyone else, but doesn’t say it because he’s so polite. He’ll go a million miles out of his way for you & forget he needed something himself. He is snuggly warm, terribly tender, and extremely witty. I am so blessed to have him for my husband and so very proud to be his wife. He is my Why.
I must also acknowledge & thank my sister Melanie Weiss, & our wonderful parents John & Betty Passarelli, who sacrificed for years to keep me alive. I love you all so much and owe you everything.
“I know what it is to live entirely for and with what I love best on earth. I hold myself supremely blest - blest beyond what language can express; because I am my husband's life as fully as he is mine.”